As the broad availability of genetic testing has mushroomed over the past two decades, privacy and potential discrimination concerns associated with testing results has increased. Until recently, Canada lagged behind other countries in this regard with no specific national legislation. That changed in 2017 with the enactment of the Genetic Non-Discrimination Act. The Act was quickly challenged on constitutional grounds, but earlier this month a divided Supreme Court of Canada upheld its validity.
The law underwent a remarkable parliamentary journey featuring opposition from successive governments, lobbying against the bill by the insurance industry, passage in the House of Commons despite objections from then-Justice Minister Jody Wilson-Raybould, and a court challenge in which the government supported the effort to declare the law invalid. Senator James Cowan, who was the lead proponent of the legislation, joins me on the podcast to discuss what prompted him to take on the issue and the unlikely path of Canada’s genetic non-discrimination law.
The podcast can be downloaded here and is embedded below. Subscribe to the podcast via Apple Podcast, Google Play, Spotify or the RSS feed. Updates on the podcast on Twitter at @Lawbytespod.
Show Notes:
Supreme Court of Canada, Reference re Genetic Non-Discrimination Act
CTV News, Genetic Non-Discrimination Law is Constitutional, Supreme Court Says
The ratification of the Canada – US- Mexico Trade Agreement has captured considerable attention with several committees studying Bill C-4, the bill aimed at...
The Law Bytes Podcast, Episode 258: Jaxson Khan With an Insider Perspective on AI Policy Development in Canada Earlier this month, the government quietly...
The interest in regulation and Web 3.0, the umbrella term for all matters crypto, continues to grow in countries around the world. In Canada,...
